Care Plan Trifecta Module 4 – Raising Your Voice with the Patient Advocacy Community

Presenter: Katie Brandt, Director of Caregiver Support Services and Public Relations, MGH Frontotemporal Disorders Unit

Tuesday, September 16, 2025 | Virtual Event

Do you have questions about care planning after an FTD diagnosis? The MGH FTD Unit is excited to offer a four part webinar series about the Care Plan Trifecta (CPT), a framework to help you develop a person-centered care plan that centers on the person with a diagnosis and their care partner and community, unifying healthcare with personal values and goals of care.

The CPT identifies specific needs of people living with a diagnosis and caregivers, prioritizes personhood and dignity, balances independence with safety, and recognizes goals of care at every stage. By focusing on three community-based domains, medical, home and patient advocacy, the CPT takes care out of the clinic and into people’s lives at home.

Katie Brandt leads the Care Plan Trifecta series, guiding individuals and families to set themselves up for success with a comprehensive care plan that respects their values, traditions and wishes for every stage of care.  This module discusses how finding the appropriate patient advocacy community can help people living with a diagnosis of FTD and related conditions and their care partners find accurate information and support as well as power over the condition by participating in research.